Collection of practical Handbooks

Sharing knowledge is a critical component of our mission, so our experts here at the CSSS-IUGS are providing tools to the public. 

The CSSS-IUGS's collection of handbooks focuses primarily on topics related to aging. The collection is intended to empower and accompany users and their loved ones through the stages of aging, severe illness, and end of life. 

Health care and social services staff also benefit from the knowledge contained in the collection. A handbook has been written specifically to help workers accompany students, residents, and interns - no small feat when considering that the CSSS-IUGS welcomed some 1,730 students across 46 disciplines in 2013-2014 alone.

To date the CSSS-IUGS collection contains four handbooks : 

Guide de réflexion en contexte de maladie grave et de fin de vie : Décider des objectifs de soins

Summary: Many people with serious illnesses want treatments that are adapted to their circumstances rather than overzealous therapy. Those individuals prioritize care which maintains their independence, quality of life, and comfort rather than care which just prolongs their lives.

This handbook covers various aspects of decision-making pertaining to health care objectives, particularly advanced health care planning, the circumstances in which the physician implements his decisions, the health care trajectory, the person who makes decisions for the patient who is incapable of doing so, ethical bearings for consideration, communications, and the handling of decisions by professsionals.

Lead author Anne-Marie Boire-Lavigne is a physician at the CSSS-IUGS, as well as a professor and the director of the office of ethical development at the Faculty of Medicine and Health Sciences of the Université de Sherbrooke. Members of the clinical ethics committee of the CSSS-IUGS also actively collaborated in developing this handbook.

Developed by the clinical ethics committee of the CSSS-IUGS: Anne-Marie Boire-Lavigne, Julie Lapierre, Yves Turmel, Johanne Boivin, Jean-Claude Demers, Marie Gratton, Élizabeth Proulx, Pierre-Michel Roy, Lysanne Beaulieu, Dominique Proulx, Louise Rondeau, Joanne Baillargeon. Published in 2013: 36 pages.

To order, click here. (french version only)

Guide pour les proches aidants et les intervenants : Problèmes rencontrés dans la maladie d'Alzheimer

Summary: Dementia or Alzheimer's disease is a neuro-degenerative pathology which affects a person's cognitive abilities and inevitably his or her ability to perform tasks of daily living as well as his or her behaviour.

This handbook provides interventions and strategies which should be adapted for each patient and adjusted throughout the evolution of the disease. Problems will vary for each individual and at each stage of the disease.

Developed by Lucie Côté and Paule Hottin with the collaboration of Claire Bonin, Hélène Brien, Line Sénécal and Jean‐François Trudel. Published in 2012: 32 pages.

To order, click here. (french version only)

Handbook Comfort Care at the End of Life for Persons with Alzheimer's Disease or Other Degenerative Diseases of the Brain - A Guide for Caregivers

Summary: This handbook stems from the outcome of a joint research project. The authors attempt to provide the simplest answers to the most frequently asked questions made by the loved ones of a person in an end of life context: disease prognosis and evolution in the advanced stages, the most common clinical issues (artificial hydration and nutrition, antibiotic therapy for repeated infections, transfer to a hospital, cardiopulmonary resuscitation), the role of the patient's representatives when the latter can no longer actively participate in the decision-making process, controlling pain and respiratory problems, the final moments, and bereavement. The contents of the handbook are in line with scientific publications and expert advice in palliative care. The clinical ethics committee of the CSSS-IUGS has approved the handbook.

Since its publication, this handbook has been disseminated both nationally and internationally, translated into many languages, and been recognized by the World Health Organization (WHO) as an example of sound practices in palliative care and in geriatrics.

Prepared and written by Marcel Arcand, M.D., M.Sc. Pharmacology, and Chantale Caron, Ph.D. Nursing Published in 2005: 28 pages.

To order, click here.

Guide de pratiques pour l’accompagnement d’étudiants

Summary: This handbook is intended for those accompanying students who are completing a part of their practical training at a health care and social services organization. Managers and other staff members may also find this handbook useful in explaining the duties and obligations related to accompanying students.

Ten topics are covered in this handbook, which is also used in training: 1. Welcoming a student to the CSSS and encouraging his integration; 2. Establishing a relationship that is conducive to a successful internship; 3. Establishing an accompaniment contract with the student; 4. Arranging internship follow-up meetings; 5. Stimulating reflection by the student; 6. Providing feedback to the student; 7. Adapting the accompaniment to the student's needs; 8. Dealing with interpersonal dynamics; 9. Assessing the professional abilities of the student; 10. Accompanying a group of students.

Written and prepared by: Julie Lane, Chantal Gohier, Line Gagné, Raymonde Camirand, Monique Roy, Jeanne Bazinet, Sophie Gaudreau, Cynthia Raymackers, Claude Dionne, Serge Frigon, Johanne Archambault. Published in 2012: 52 pages.

To order, click here.  (french version only)